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How we conducted rare disease patient research during the COVID-19 lockdown in China

How we conducted rare disease patient research during the COVID-19 lockdown in China

Our client needed to conduct a small number of qualitative interviews in China with patients diagnosed with a rare condition which affects children and young adults. The results of the survey were time critical as they were needed to inform a protocol being published in 30 working days. We faced two key challenges, firstly to find, screen and recruit diagnosed patients with a prevalence of 0.9 per 100,000 and secondly to achieve this during the restrictions of the COVID-19 lockdown in 2020.
 

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