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Welcome to Rapport, containing tips, truths, news and views, blogs, tweets, articles and films covering a range of topics currently affecting Research Partnership and the pharma market research world

How we conducted rare disease patient research during the COVID-19 lockdown in China

How we conducted rare disease patient research during the COVID-19 lockdown in China

Our client needed to conduct a small number of qualitative interviews in China with patients diagnosed with a rare condition which affects children and young adults. The results of the survey were time critical as they were needed to inform a protocol being published in 30 working days. We faced two key challenges, firstly to find, screen and recruit diagnosed patients with a prevalence of 0.9 per 100,000 and secondly to achieve this during the restrictions of the COVID-19 lockdown in 2020.
 

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  • Posted by Danielle Christmas
  • May 26, 2020
  • Blogs

The impact of COVID-19 on rare disease patients in the EU

 The impact of COVID-19 on rare disease patients in the EU

We’re living in challenging times. Everyone is struggling in some way or another as a result of the ongoing lockdowns and current social distancing measures that are in place, aimed at shielding mankind from the ‘invisible enemy’ that is COVID-19. Over the last few months, as we’ve all been muddling through, I have often found myself thinking about those people who are living with a rare disease, and the additional impact that the pandemic must be having on their lives.

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  • Posted by Ellie Forde
  • February 18, 2020
  • Articles

3 trends the healthcare market research industry should watch out for over the next decade

3 trends the healthcare market research industry should watch out for over the next decade

As we head into the 2020s, Associate Director Ellie Forde considers the key trends that might impact healthcare over the next 10 years and the possible impacts on market research.

My colleague Rachel Howard wrote a blog at the end of last year reviewing her predictions in 2010 for the coming decade. As we head into the 2020s, I thought it might be timely to consider the key trends that might impact healthcare over the next 10 years. With technology advancing at an ever-increasing pace, these may be many, but I want to focus on what I believe are three of the big ‘watch outs’, and those I am personally excited about. 

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How we uncovered unmet needs using social media listening

How we uncovered unmet needs using social media listening

Our client wanted to further their understanding of the impacts a long-term rare skin condition can have on patients by exploring the patient journey. Market research was required to identify opportunities for improving the patient experience and inform the brand strategy for their product.
 

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  • Posted by Harrison Gaiger
  • September 20, 2019
  • Articles

Engaging patient advocacy groups: The key to conducting effective rare disease research

Engaging patient advocacy groups: The key to conducting effective rare disease research

This article, published by Pharma Times September 2019, outlines why market researchers should reach out to patient advocacy groups when conducting rare disease research.

Until recently, the size of the market for specific rare diseases had made it difficult for pharmaceutical companies to justify research and development costs. The introduction of regulatory benefits such as longer market exclusivity, breakthrough designations, reduced fees and tax incentives have encouraged more investment. Nevertheless, where funding has been allocated for rare diseases, the scarcity and geographical dispersal of patients can make it difficult to conduct effective market research. Identifying and recruiting respondents is one of the core challenges when conducting research in this space.

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