How we conducted rare disease patient research during the COVID-19 lockdown in China
Our client needed to conduct a small number of qualitative interviews in China with patients diagnosed with a rare condition which affects children and young adults. The results of the survey were time critical as they were needed to inform a protocol being published in 30 working days. We faced two key challenges, firstly to find, screen and recruit diagnosed patients with a prevalence of 0.9 per 100,000 and secondly to achieve this during the restrictions of the COVID-19 lockdown in 2020.
The impact of COVID-19 on rare disease patients in the EU
We’re living in challenging times. Everyone is struggling in some way or another as a result of the ongoing lockdowns and current social distancing measures that are in place, aimed at shielding mankind from the ‘invisible enemy’ that is COVID-19. Over the last few months, as we’ve all been muddling through, I have often found myself thinking about those people who are living with a rare disease, and the additional impact that the pandemic must be having on their lives.
Small numbers, big challenges: The complexities of economic modelling for rare diseases
Misti Paul, Analytics Director, explores some of the reasons why economic modelling of rare diseases is so challenging.
Rare diseases are a big area of investment for pharma, because of the lower costs of R&D, accelerated drug approval process, longer patent life and pricing incentives. However, economic modelling can be very challenging. The problem with rare diseases starts with defining what one is. In Europe, a rare disease is one that affects less than one person per 2000. The European Commission defines an ultra-orphan disease as one that affects less than one person in 50,000. In the US, a rare disease is defined by the FDA as one affecting fewer than 200,000 people. However, beyond market definitions, the challenges of economic modelling of these rare diseases are immense.
3 trends the healthcare market research industry should watch out for over the next decade
As we head into the 2020s, Associate Director Ellie Forde considers the key trends that might impact healthcare over the next 10 years and the possible impacts on market research.
My colleague Rachel Howard wrote a blog at the end of last year reviewing her predictions in 2010 for the coming decade. As we head into the 2020s, I thought it might be timely to consider the key trends that might impact healthcare over the next 10 years. With technology advancing at an ever-increasing pace, these may be many, but I want to focus on what I believe are three of the big ‘watch outs’, and those I am personally excited about.
How we uncovered unmet needs using social media listening
Our client wanted to further their understanding of the impacts a long-term rare skin condition can have on patients by exploring the patient journey. Market research was required to identify opportunities for improving the patient experience and inform the brand strategy for their product.