Research Partnership has a wealth of experience conducting primary research in rare diseases with patients, with a strong network of specialist recruiters so this was less of a challenge. The big question was how to conduct an in-depth qualitative interview with a patient using a remote methodology. The selected methodology had to fulfil a number of criteria:
- Engage the respondent allowing them to fully participate with the moderator
- Allow the moderator to control the sharing of confidential material
- Permit the respondent to share content which they had been given at recruitment and had completed prior to the interview
- To be easy to use for the respondent on a tablet or smart phone and the call quality had to be of the highest possible standard
We selected Zoom as the best tool for this study as it fulfilled all the key criteria and allowed the respondent to conduct the interview in their apartment without interruption.